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I also have MAA
Hi there, Danazol did boost up my HGB, about an 11 now, after being on it since 2011. I did have to start Promacta this year due to platelets headed to low 20's. My WBC is still low. I hope this helps and that it works for you too!
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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