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Old Mon Dec 29, 2014, 02:49 AM
JordanN JordanN is offline
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Join Date: Nov 2014
Location: California
Posts: 59
Hi, Halo!

I'm sorry to hear about all the difficulties your father is having. My father is also 80 years old and has MDS RAEB-2 with 18% marrow blasts. When he was first diagnosed with MDs 10 months ago his Hgb was 8, and since then he has needed at least one transfusion about every 2 weeks. It tends to fall gradually over a week or two, but occasionally he will have it drop dramatically in just a few days. Everyone seems to be quite different with this disease, but it seems from other member's stories, that this is not an uncommon pattern. Also, when my dad was on Vidaza, his Hgb would drop 2 or 3 points (so from 8 to 5 or 6) by the fourth or fifth day of Vidaza infusions. For him, his hgb never rises without transfusions.

I hope the doctors can find an answer to your dad's foot swelling and pain - so uncomfortable and scary for him!

I wish you and your dad the best of luck in all of your treatments and hope you have a wonderful new year together!
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