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Old Thu Aug 12, 2021, 03:22 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Matthew42,

You may want to use this time to get yet another opinion from an AA expert. Giving a second round of ATG may make sense if it was felt that the immune attack was still going on in full-force. I am not sure how they can definitively tell this though.

Having such frequent RBC transfusion is concerning. Is your mom fighting a virus now?

Has she been tested for PNH?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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