[starz]

Sorry its been a long time since I posted. Today is Nicks 1 year anniversary and its been a long and difficult journey.
The good news is that the transplant has been successful, blood levels are mostly normal. The downside was the PML that has caused some devastating mobility problems, and the GVHD which surfaced in his skin, liver, gut, eyes and salivary ducts. We are still working through the complex issues and have many hospital appointments mainly for skin PUVA and also following a corneal transplant.
He has also had issues with pancreas insufficiency and needs Creon capsules with food. The hardest for him is his lack of appetite and saliva, so he seems unable to gain weight.
Still a long way to go, but he is trying to fight his way to health.
Starz