|
Nicks PML diagnosis was made from an MRI scan, and a 2nd MRI a few months later showed some improvement, although another small area of his brain had showed new signs. Its hard to say that its gone... although he did make lots of big improvements, however some things are getting worse again. His mobility is the worst affected and he uses a wheelchair when he is out.
It really is a horrible virus to reactivate.
His skin has definately improved with PUVA, it doesnt have active GVHD but has been left a bit mottled in places. I think that will improve. It has been shown that he relies on extensive mosturising, Hydramol is used every day.
Nutrition has been another big issue and he does seem to exist on liquid supplements like Scandishake and Complan shake and everything else he eats is a bonus. As he had a high metabolic rate he needs a very high calorie intake, and that is so very difficult.
We keep hoping things will improve for him.
Starz
__________________
Gem, wife of Nick (57), dx CMML Dec 2007. Treated with 7 cycles Azacytidine. Transplant 30/6 RIC MUD.
|