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I am very sorry to say that Nick died yesterday after another battle with his GVHD. He had been readmitted to Kings in August to address the issues around his weight. He had a PEG feeding tube but still needed to eat as well, which he found too difficult.
Eventually I feel he was too tired to battle any more, and had a very peaceful death.
Thank you all for this site and your contributions. I hope it helps to inform people to find the cure for this horrible disease
Gem
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Gem, wife of Nick (57), dx CMML Dec 2007. Treated with 7 cycles Azacytidine. Transplant 30/6 RIC MUD.
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