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Rigors!
Quote:
Originally Posted by Bossywife
My husband has been having rigors (shaking) at night with no fever. He is not cold. His blood work is the same as usual (low WBC, platelets and slightly low hgb ).
He sees the doctor this week, but not the bone marrow specialist until Feb.
Has anyone else experienced this?
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Bossywife, this was actually the symptom my husband was experiencing (probably a dozen times over 4 months) that got him to the doctor that led to his MDS diagnosis. None of the doctors could say for sure if it was a symptom of MDS. Not too much later he was also diagnosed with AFIB, and that was resolved quickly with an ablation (quickly because of the mds issue). He has not had the rigors since the the AFIB was resolved so I wonder if it was, perhaps, instead related to the developing cardiac issue?
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Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day.
October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019.
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