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Old Tue Sep 17, 2013, 11:16 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Deb thank you for the advise! My husband is admitted oct 3rd and we have not been told about the shoes and slippers.

Neil we have always brought lap tops, iPads, games, even E cigs ( that is how we quit smoking. We brought them during his ATG stay) and never had a problem.
The only thing is when I use the hospital wifi I cannot access certain sites (pnhdisease.org is one of them)
Chirly very good point we didn't pay much mind to our personal things when we were not in the room during his ATG . I will now! Sorry that happened to you!
Deb and Dave keep me updated and I'll do the same!
Next up for us: body mapping and banking
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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