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Old Wed Apr 18, 2018, 02:08 PM
David M David M is offline
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Join Date: Sep 2009
Location: Fayetteville, TN
Posts: 89
A Mixed Bag...

I am thankful that your counts are somewhat improved! That is always reason to celebrate! I know you are concerned about you PNH test results. It will be interesting to see what your Dr. says... waiting is one of the hardest things!

It is a little too early for my "yearly" report, but I did go to my local hematologist yesterday for a 6 month visit. Overall, counts were about the same. Oddly, my creatinine levels (which have always been on the upper limit) were above the upper limit some. Got to drink more water and reduce coffee (i.e. caffeine) intake... arrrgggggh. Other than that, pretty much the same. No new symptoms to report either! Could be better... but could be much, much worse. (So I am thankful!)

As you say, the journey continues... Keep us posted!!!
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David M, reds/whites/plats slowly declining since 2000; hypo-cellular bone marrow; diagnosed Mild AA; low counts, but stable since 2009; watch and wait -- no treatments required to this point.
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