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Neutropenia
Hi Peachy!
You know during the almost nine years I have had the dx MDS I have really not struggled. I have only felt ill when I had neutropenic fever - otherwise I have been able to do everything except that I have been very afraid of infections.
This means that I only travel in my own car (now taxi), only meet friends in restaurant with "much air" or outdoors, only go to musicals, circus etc with my grandchildren when I can get a seat in the first row of the balcony etc.
The disease and/or Thalidomide, that worked three years for me, has resulted in neuropathia, so I can't walk as before and my hands are weak.
Since X-mas, when I had neutropenic fever for the 4:th time, I feel very tired but I have no pains, nausea or other symptoms. I have said good bye to my wonderful doctor since almost nine years because I don't have any treatment that should be prescribed by a hematologist and other patients are needing his time.
Now I am waiting for home care so I won't have to go by taxi to the hospital for blood work and txs.
As I have written at another post I hope that Revlimid will work for your husband!
Kind regards
Birgitta-A
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