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Hi Becca,
I am sorry you and your father are having to deal with this. My husband was treated at The NIH starting in 2009. They gave him Neulasta which is similar to Neupogen. He didn't have any side effects and it did bring his white cells up. He was at great risk for infection which could have killed him.
After over 125 blood/platelet transfusions, he entered a clinical trial at NIH as the first MDS patient to receive Promacta. He took it from spring 2011 until August 2012. He has been in remission since and has not needed a transfusion since Aug. 2011 which was for a colonoscopy. The first drug they gave him was Campath. One of the side effects listed was "death". As Neal said, they list any and everything. It was a roll of the dice for my husband but it certainly paid off. His situation was bad enough that he really didn't have a choice.
All the best,
Sally
Last edited by Sally C : Thu Jun 10, 2021 at 11:18 AM.
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