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Old Thu Oct 25, 2007, 04:46 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS diagnosis

Hi Chirley,
I have never read anything about giving 8 to 10 units of blood "to try and prod the bone marrow into producing more cells so you have a better chance of finding dysplastic cells" and donĀ“t think it is a common method.

The other idea "to give another iron infusion just to see what happens" and admit you to the Intensive Care Unit because your skin burns and blisters seems just as uncommon.

Then I think it is better to give 2 units of blood more frequent than to give 4 units every 5th week.

If I was you I should try to find a new hematologist even if you have been to numerous. I think the hematologists at MD Anderson Cancer Center are the best in the world. In any case you have to go to a university clinic where they have better possibilities to perform the complicated tests you need to get the correct diagnosis
Kind regards
Birgitta
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