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Bossywife, the part that seems concerning is that I felt totally fine right up to my stem cell transplant. I was golfing 18 holes (walking the hilly 6 mile course) once a week with no problems. My platelets started dropping quickly. My other counts were comfortably in the normal range. I had two bone marrow biopsies within a week and within another week we were discussing a stem cell transplant. All of this seemed surreal because I was feeling completely normal. They started me on Vidaza in the next week to have me in optimum position for the SCT. I continued walking the golf course right up until a week before the SCT. The doctors mentioned many times how significant it was that we acted immediately before my health deteriorated and might put the SCT in jeopardy.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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