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Old Tue Apr 12, 2011, 10:46 AM
Neel Neel is offline
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Join Date: Dec 2010
Location: delhi india
Posts: 73
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Hello and thanx bepop and brig,

My father had developed purpura on legs and petechiae/rash of arnd 1 inch in dia on the chest today, so got his cbc done and as feared the platelet count was 10000 (it was 16000 in other lab). Went for transfusion. As such my father is not seeing any alopathic doctor, however we are taking treatment of ayuervedic physician. His medicine worked quite well initially, but later on his counts have started going down. the main cause of concern in last few months have been his TLC count and platelet count, but lately his Hb is also taking a dip. its 10 at present, TLC are arnd 1800 with 18% Neutrphil. after exploring on the net and going thru the experience of ppl on this fourm i wont say that the ayurvedic treatment isnt doing any good, but its not upto the expectations at present. My dad's last transfusion was on 26th october 2010, (his BMB was received and diagnosis was made on 19/10/2010) at that time his Hb was 6, TLC 1700 (went as low as 700) and platelet were 30000, got arnd 3 unit of platelet asphrisi and 6 unit concentrate and 10 unit of PRC from 13/10/2010 till 26/102010. Started this ayurvedic treatment on 23/10/2010 and never felt any need for any transfusion after that. after 26/10/2010, he has now again become transfusion dependent, and got 1 unit of platelet ashprisis on 2/4/2011 and one unit today. The ayurvedic medicine gave him arnd 5 months of transfusion independency. His highest Hb was in feb 2011 arnd 14, Platelet highest were in Nov 2010 arnd 300000, and TLC highest was in Nov 2010 arnd 6400.

Any advise wht to do in future,

Regards,

Neel
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Father age 64 diagnosed with MDS RAEB-2, with 15%-18% blasts in October 2010. Only had blood and platelet transfusions. Ayurvedic treatment which showed result for arnd 5 months. Started Tahlidomide 100 mg started on 22 nd April 2011. Revolade 50 mg started on 2 nd april 2012.
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