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Old Tue Aug 6, 2013, 12:09 PM
LizR LizR is offline
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Join Date: May 2013
Location: Las Vegas, NV
Posts: 35
Chelation - How much and when?

I'm really confused on chelation. They first checked Bob's ferritin in late May and it was 1225. Since then he has gotten 5 units PBRCs and had 2 desferal infusions of 500 and one of 250. His ferritin is now 1918 and another 500 is scheduled.

Is this normal? Is it possible to need desferal after every PBRC unit? I read the article in the MDS Beacon last week about transfusions and chelation and am now more confused than ever. He can't take Exjade as he is high-risk MDS.

Thanks!
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Liz, wife of Bob (64) dx 11/2012 RAEB II now 15% blasts rare t(1;3)(p36.3q21) Vidaza, Aranesp, Exjade
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