|
Hi Mseth,
Yes I have been taking exjade on and off for 4 years. I am supposed to take 2000 mg a day but lately have been taking 1500 mg a day. I also went months without taking any last winter. Currently my ferritin is really high, around 2000, but for a long time it went down to around 1000 and stayed there even with no exjade. I know ferritin is also a marker of inflammation and one time when I had the flu it went to 4200 but was back down to around 1200 the next test.
I went strict gluten free on May 25, and my hemoglobin drops have been getting smaller, so I am encouraged. I have noticed about a 4 - 5 week time lag in quitting gluten and having it show up in my counts, so a month may not be long enough. I also avoid oats, barley and rye. I had what I think was dermatitis herpetiformis (the celiac rash) which went away as soon as I quit gluten (within about the first 2 weeks), but "avoiding wheat" wasn't good enough to clear it up, I had to get strict about it and read labels.
Deb
|