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Old Thu Nov 6, 2014, 11:04 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Missy,

It is interesting that your dad is taking Keppra as there is another person on this forum who is thinking that this drug may be linked to their wife's AA. (clairekim)

How much does your dad weigh? When I was on a very high dose of cyclosporine, I also was extremely tired and confused. The typical dosage these days is 5mg/kg-of-body-weight/day.

The fact that they didn't start your dad on modified cyclosporine has me a little concerned that his doctor may not have a lot of experience treating AA patients. If this is the case, you need to seek a second opinion from someone with experience ASAP!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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