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I have MDS and get my treatment from West Palm Beach VA hospital. Of course I was already enrolled and a patient before they discovered my MDS, but they did find it. So I may not be of much help about claims.
My experience has been, my primary is an okay guy for general things. My Onc/Hema Doc is very good, sharp and seems to know what is going on with me and what treatment path we should be following. I have the slow progressive type and the waiting and patience is killing me.
Hope I've been of some help. Stay around and ask a lot of questions, someone here probably has an answer. Good luck on your journey
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Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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