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Old Mon Jun 13, 2016, 11:44 PM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 583
With my doctor's permission, i was trying to take the the study doses of curcurmin along with some green tea extract. It was easy enough to get to the study levels of curcurmin, the green tea extract was pretty expensive. I did not notice any negative effects. My MDS stayed steady for about 4 years before I had to have a transplant. I took the curcurmin and green tea extract for several months. There really wasn't any improvement on or off for me. I know that there was a doctor at MSKCC who was doing a study several years ago, but haven't seen anything updated in several years.
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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