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Old Tue May 25, 2010, 02:48 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi Michelle,
You know when we get the dx MDS we have to have bone marrow dysplasia (mis-shaped bone marrow cells). In your report from the bone marrow biopsy they don't write anything about dysplasia.

There is a subgroup of MDS called Idiopathic Cytopenia of Undetermined Significance (ICUS). The patients should have dysplasia but can have very low count of only one celline for example neutrophils.

http://www.leukemia-net.org/content/...2009_02_19.doc

I don't think you have MDS since the most important diagnostic criteria (dysplasia) is missing. Your symptoms like fatigue, night sweats and osteosclerosis can be due to other diseases and it is good that you soon will have an oncology visit and be able to discuss your symptoms.
Kind regards
Birgitta-A
71 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal and Exjade for iron overload, Neupogen 2 injections/week for low WBCs
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