[Grifmat]

So I went to the doctor with my mom yesterday. He is not a specialist but is consulting with the doctor at Yale, who my mom has only seen once. He is the doctor who first dx my mom with CLL and then switched it to AA and then the Yale doctor said he didn't think it was either. I had a lot of questions and he was annoyed that I had so many. They were legitimate questions and educated questions. I had a feeling my mom was taking a very high dose of Gengraf and sure enough her levels (I think they are called troughs) were high. They are supposed to be between 200 - 400 and they were at 580. I'm not sure how high that is but he did lower her dosage. When I asked him about taking magnesium and limiting potassium he literally blew me off and said "we check her magnesium levels and there are no restrictions on her diet"...then he walked out! I do not feel comfortable with him at all. I haven't met the other doctor at Yale yet but I'm not sure the team of doctors that are caring for my mother are what is best for her. I'm researching The Dana Farber Institute in Boston which is the same distance as Yale. About an hour away. Has anyone ever dealt with this sort of treatment from their doctors? Have you had to switch? Worked with the Dana Farber Institute?? I just want to make sure she is getting all that she needs and that these doctors aren't doing more harm than good.