Thread: dealing with doctors!
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Old Wed Apr 17, 2013, 12:32 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
The PRCA that I have is very rare. My first oncologist was doing her best and she was consulting with a doctor at the medical school. I didn't know any better.

Once I found a good doctor (actually two) things were so much better. Those mistakes with the meds etc. no longer existed and I started to improve.

These are rare diseases. Don't be someone for the doctor to learn on.

Try this guy
http://doctors.dana-farber.org/direc...ict_id=0000298

or this guy
http://doctors.dana-farber.org/direc...ict_id=2178766

at Dana Farber.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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