Thank you hopeful. I'm not even sure what he was talking about when he said her "levels" were too high. He just said they should be between 200 and 400 and her's were at 580. I'm not even sure if they were troughs...he just called them levels and wasn't very forth coming with information. It was as if he didn't want me to know too much...which I think is ridiculous! Thank you for the link...I will definately check it out and pass on the info to my mom. We will see the doctor at Yale...he is a specialist in hematology and myelodysplasia syndromes and blood disorders but there is no reason why we shouldn't be consulting or getting a second opinion at Dana Farber. Yesterday when we left the doctor's office my mom said he was in a hurry because he had other patients he needed to get to....but, I told her, we only have one you.
