Thread: BMT or not?
View Single Post
  #2  
Old Tue Sep 29, 2015, 08:26 AM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I'm very sorry this disease hit you at such an important time of your life. It's not easy for anyone and it's especially difficult when you are pregnant. If you haven't already, get a second opinion. How much experience does your doctor have with aplastic anemia? You want someone who does.

I would not jump into a transplant if things are stable and you are not needing any transfusions. You have time to seek another opinion. You may not be classified as Severe at this point and unless things have changed, they usually don't treat moderate or Non-severe AA. Severe means platelets are under 20K, Retic (corrected for anemia is under 1% and/or ARETIC is low) and your ANC is less than .5.

Have they checked your nutritional levels? Specifically B12, folate, copper, iron, D and zinc? Also your homocysteine and MMA. And if you were taking supplements when they checked them, they could be falsely elevated. Any digestive issues?

What does your white count & ANC count look like? And absolute reticulocyte count look like too?
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote