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Thanks ever so much Neil. I wish we has been more pro-active when she was first diagnosed. She was at her peak, physically then - an avid rambler and regular at the gym/pool, but her consultant advised transfusion maintanencae and iron chelation, which, up until recently, has worked well - it's a steep learning curve getting to grips with the language of haematology!
We'll find out more at her looming 'big' appointemnt on Friday - fingers crossed!
Many many thanks for your help here
Jacqui
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