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Old Fri Oct 22, 2021, 03:30 AM
Peter R. Peter R. is offline
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Join Date: Oct 2021
Location: Hamburg
Posts: 2
MDS 5q- since 1994 (!)

Dear Forum-Members,
my name ist Peter, living in Germany near Hamburg. I am a new member of this forum but I think one of the oldest members as well, because I was on the AA-MDS-Talk for some years starting in 1996.
My mother Christa was diagnosed with MDS5q- back in 1994 (!!!) and gets transfusions since then. She uses Desferal for a long time every second night. She was offered several different treatments during the decades but always refused them. "Never change a running system", she said.
Now she is 88, nearly blind but absolutly clear in her mind and always on the internet, especially youtube, and in contact with her grandchildren.
Things are now getting worse, the time between the transfusions decrease to below two weeks and she is offered Revlimid.
I hope to find some people in this forum to get informations about Revlimid in older Patients. How about side-effects in this group? How about the danger of getting infections, especially in times of Corona?
Thanks for input,
Peter
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