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Thank you all so much for taking the time to reply to my post -
Sally I am sorry to hear that your Husband has had such a terrible time but so pleased that he is now transfusion independent and wish you both my best thoughts and wishes going forward. Did your husband have to have more BM Biopsies to reach the diagnosis or was it just diagnosed via the Blood tests?
Tom and Chirley - it sounds like this is a long road to travel as you say "chasing a diagnosis" is very frustrating as you do not know what you are dealing with, however much you do not wish for bad news.
Regards
Petra
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