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Hi Grifmat,
You can always get some more eyes looking at your mom's situation - either Dana Farber or NIH. The treatments do take time to work, but this could be a productive thing to do during this difficult waiting period.
I will try debugging the doctor speak...
"not clonal" is good because sometimes these diseases can evolve to MDS or AML. Hers is stable.
"not cellular" or hypocellular means that her marrow is empty of blood cells. This is what you would see in AA or hypocellular MDS and is probably indicative of an immune attack. In traditional MDS, the marrow would be packed with too many cells. Here's an analogy...with MDS, the blood-cell- factory is broken and is producing too many deformed cells. With AA, someone is attacking the factory so that it can hardly produce any cells.
Megakaryocytes are the precursers to platelets. So, it is good if the doctor sees them and they are not abnormal in form (in which case he would have said that she has megakaryocytosis).
Be sure to get copies of all of your mom's BMB's and CBC's!
I hope the HLA matched platelets work for your mom!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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