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John's threshold was dropped to 8K. In the beginning, before treatment and for about one year out of treatment, 10K was his threshold. Then we decided to see what he was holding at and 8K was the magic number. Of course, all bets were off if he started to bleed.
It helped to know what his clotting times were. And they were good at 8K. Your doc can run some test to assess it. I also had him on vitamin K as well as old fashion gelatin (animal source). Gelatin contains clotting factors.
Our doctor once told us that they will go as low as 5K in Aplastic Anemia.
Hopeful's suggestion of a trial at 15K sounds like a reasonable approach and if he does well at 15K you can step it down again.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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