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Old Wed May 8, 2013, 11:02 AM
tom30 tom30 is offline
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Join Date: Sep 2010
Location: Brooklyn, New York
Posts: 108
For what it is worth, I had asked my doctor about a similar trial about 3 years ago. At the time he had tentatively diagnosed me with early MDS now he leaning towards an unknown autoimmune issue. Anyway I asked him about the trial - his response was something like - Why would you want to do a trial when it could make your condition worse. I was going to call the doctor who was handling the trial but never did I looked at my old posts and it was a Azra Raza she pops up in MDS news from time to time in reference to trials with Turmeric and curcumin. I had bought a bottle of capsules but wound up tossing them after the expiration date.
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Tom- 62 yrs old, dx-eosinophilic fasciitis 2004, 1 yr prednisone resolves EF- now low counts, HGB has been ok... EF has been associated with MDS along with AA.
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