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Old Thu Oct 16, 2014, 12:24 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Rentzi,

This is the hard part...waiting. Many people are still transfusion dependent at 8 weeks. So do not panic! A response at 3 months is considered early. 6-9 months is more typical. For some people, it is even longer. Also, keep in mind that a response does not necessarily mean near normal counts. The first thing to hope for is transfusion independence.

Prednisone does falsely elevate the ANC. Look for the real increases now that he is off of it.

Good luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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