View Single Post
  #2  
Old Thu Dec 9, 2010, 05:40 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Vidaza

Hi Paolo,
I think your mother is in good hands - her treatment is the same as in the best clinics. Many clinics stop Vidaza after 6 months but research shows that some patients respond after 9 month or still later. Good that she is getting granulocyt stimulating injections like Neupogen.

1. Your mother has responded - otherwise she should have had lower counts and moore blasts.

2. Nobody knows when to stop Vidaza but there are several abstracts in the last American Hematology Society Conference (ASH 2010) reporting that patients that have responded to Vidaza get worse when Vidaza no longer is working but Vidaza has not failed in your mother.

3. Vidaza is often given subcutaneous in the abdomen too. Some patients report good effect of Primrose oil for bruises after Vidaza injections.

You know Vidaza (azacitidine) can be given in the veins and many patients get a port-a-cath (a small titan device planted under the skin under the clavicula with connection to a big vein) for transfusions and other treatments like Vidaza. Look at page 2 http://www.rxlist.com/vidaza-drug.htm

Kind regards
Birgitta-A
71 yo, dx MDS Interm-1 May 2006, transfusion dependent from dx, Desferal and Exjade for iron overload, Neupogen 3 injections/week for low white blood cells, started Thalidomide + Prednisone June 2010 with good response - last transfusion 10th Sept platelets increased from 22 to 78.
Reply With Quote