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Bliss.
I weighed myself when I took the fluid tablet and again 6 hours later and I've already lost 3 kilograms. I'm still swollen with pitting edema up to the high shin area, swollen face and hands etc but that gurgling feeling in my throat upper chest has gone. I still wheeze if I take a deep breath but I CAN take a deep breath now.
I might get a decent sleep tonight.
Thanks for all your concern. I felt as if my doctors didn't quite understand how bad I was feeling.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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