Thread: Fludrocortisone
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Old Sat Apr 21, 2012, 09:19 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Good idea to keep track of your weight, input and output. When John underwent treatment, they did that. But somehow they didn't think 30 pounds in one week was excessive!!!!!

This way, when you go to your next dr appt, you'll have some data in addition to your symptoms.

The result of John's excess fluid in the beginning was a build up of fluid in the lining of his lungs. He felt like he had a band squeezing him around his lower rib cage. They gave him lasix which took off a lot of the fluid but did not resolve the lung issue. Eventually, about two and half month, he was at his worst and had still not recovered any counts, the fluid built up around his heart also. They really waited till the last possible moment before intervening.

I'm glad you have some relief but don't go too long before getting things checked out.

Some more sources of potassium:
http://www.healthaliciousness.com/ar...-potassium.php
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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