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Neil we finally are seeing Dr. Rice Monday! We are excited to see what advise he has!
Since joining, my husband dropped dangerously low in all counts. thank y'all for the advise. Between the drop and advise to see an expert we have realized the importance in seeing Dr. Rice.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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