[Susan]

Just make sure your doctor has put you on an anticoagulant such as warfarin.

Should you need a transplant the National Institutes of Health in Bethesda Maryland, US accepts patients free of charge from everywhere in the world.
You would have your hematologist call, then send your records. All the treatments are trials, one may be right for you. A friend of mine with PNH and clot history had his stem cell transplant there and is alive many years latter doing great!

Happy New Year!