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Hi Birgitta - Promacta
You might want to check at Promactacares.com, they arranged my Rx for Promacta even though it is not currently approved for MDS. There is another site by GlaxoSmithKline, maker of Promacta, that assists US residents on Medicare: http://www.gskforyou.com/16_programs.htm
Perhaps you and your doctor might be able to get Promacta for you.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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