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Old Wed Feb 23, 2011, 02:20 PM
mscrzy1 mscrzy1 is offline
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Join Date: Jan 2011
Location: California
Posts: 103
My ATG took place in 1996 before they knew about long tapers with cyclosporin, but even so, at the 100 day mark I had absolutely NO response to the ATG. In fact, my counts were worse. We were in a standstill as to what to do with me. They didn't even think about doing ATG again then. Or at least, I don't remember it even being on the table. I was on supportive care for a while and suddenly my counts just started to slowly improve. I had my ATG in March of 1996. I had my last blood transfusion in August of 1997. That is an entire year and 5 months after my ATG. I say that it's too early to think about a BMT. That's just my 2 cents. Stay hopeful!
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Angie

36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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