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Old Mon May 13, 2013, 09:18 AM
AngieA AngieA is offline
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Join Date: Sep 2012
Location: Decatur GA
Posts: 15
After your transplant, did you...l

One of the things I've not seen discussed here is mental confusion.

Doc says it's normal...but sometimes what they say and what someone says that's actually lived through it differ somewhat

Bill is Day 33 and the mental confusion is still pretty significant. Did you or your loved one go through this and if it did how long did it last?

Also, have you had to have blood transfusions after your numbers started recovering from the transplant. How about white cell counts? Did they go up and down?

He's started with a rash now...mild right now. Hoping it stays that way. He's decreased eating but still eating a sufficient amount I think..His sodium levels are low inspite of eating and drinking powerade/ V8, well salted foods and nuts and limiting water...Lower extrementy swelling is also a real problem for him. Any advise?

I very much appreciate you input
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Angie, wife to Bill age 65; Diagnosed MDS May 2012; Post mini MUDD almost 2 years. Has some GVHD in mouth, otherwise doing well.
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