That makes sense....thanks so much for explaining it. I now remember reading about that a long time ago but quickly purged it from brain if I didn't need to worry about it. I recall looking at John for these "other" indications and of course did not see any. But I did have my magnifying glass out at the time  .
I can see how much more complicated treating the genetic syndromes are.
Take care,
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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