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Old Thu Jul 23, 2009, 12:25 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Steven,

I agree with Jez that your father's creatine and GFR numbers appear very concerning. The drug manufacturer for Neoral/Gengraf recommends that a patient's creatinine level should not exceed 30% of their baseline (before treatment) to avoid increased risk of permanent kidney damage. If your father's hematologist is not responsive to your concerns, have his primary care doctor refer him to a nephrologist.

When his cyclosporine dosage lowers, his gums will improve.

Also, I've been told that the cyclosporine dosage should not exceed 5 mg/kg/day. What is your father's weight?

Unfortunately, we really need to be our own health advocates these days.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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