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I cannot believe the doctor has not stopped the Exjade with a creatinine of 2.8. John's doc stopped it when his spiked to 1.7 and John's Exjade dose was only 750mg. It took about a month for it to come back down. He also sent John for sonogram on his kidneys. They started it back up again at lower dose but it sent the creatinine up again. No more Exjade for John.
There's a real risk of kidney/liver problems with Exjade and I would err on the side of caution. How high is his FE and how long has it been elevated?
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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