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Old Sat Aug 1, 2009, 03:20 AM
Steven Steven is offline
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Join Date: Jul 2009
Location: New York
Posts: 16
Thanks for all the info Marlene! We've had over 20 red blood transfusions (over 40 units), so I think the current ferritin level is more or less accurate. I'll see what the next ferritin and creatinine levels are before deciding whether to interrupt the exjade. Since we stopped taking cyclosporine, I'm hoping to see some sort of improvement, even though it hasn't been long.

It's interesting that you think exjade is sometimes prescribed almost unnecessarily, because I spoke to a nurse about this about a month ago, and she had a similar opinion on it.
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Son of 70 yo; diagnosed MDS 11/2008, treated with vidaza; diagnosed AA 3/2009, treated with ATG, cyclosporine and exjade; rediagnosed MDS 7/2009, restarted with 2 cycles of vidaza, but currently halted treatment of both vidaza and exjade due to severe effects from the drugs.
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