[lotusbud]

Thank you Neil.
That is what I was wondering, especially the "tails" that we do not know about. And, like you pointed out, the statistics are history, actually what happened to a number of people years ago, so directly it is not a personal prediction for anybody. And I suppose one never knows, either way. Also I understand that most MDS patients in statistics are over 60 years; for a 60-year old twenty or even 10 years is quite different from somebody in their 30's.
But I suppose the doctors need something to go by, balancing safety and survival, risk in different ways. Even aspirin carries its risk, but it is not great; but the perceived benefit is greater. Well, at least for most of us.
I actually have tried to find out what happens to long-living MDS people - how long is the longest? I have not found information, mostly on the high-risk ones.
Or, if people jump from one category to another, how do they fit into statistics? Oh the joy of statistics!