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Originally Posted by susansr
I am nearing one year post-ATG, and still in the same plateau; platelets values the same and needing RBCs every 2-3 months. Not to say this is ideal, but its my story. Always helpful hearing about others similar.
At this point we are in the talking stages of considering a 2nd round of ATG. Not sure when, how long, or any details. will keep you informed since it might give you some insight.
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Dear SusanSR, thanks for sharing your latest conditions. Yes, it is helpful when one heard from others with same disease and similar. I am thankful for this forum, for all those here to share their stories, knowledge and experience. I learn from here that we need to be patient when facing this disease. So I keep my fingers crossed for my niece and for others also suffering from this dreadful disease. I hope your response, though slow, would be further and further improved in the coming months, with a delayed response as some other members in this forum.