Thread: Port question.
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Old Sun May 27, 2018, 01:59 PM
Barb Barb is offline
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Join Date: Jan 2018
Location: Columbus, Ohio
Posts: 28
Hi Carol,

I generally only take my temp if I do not feel well. Then I do take it evey few hours, though my provider told me 4 times daily is enough when not feeling well. My ANC is currently at 60, so definately in critical range. I do it the same whether my port is accessed or not.

Do whatever you are comfortable with. You have enough on your plate. If taking your temp more often gives you oeace do it. If it is an annoyance don't. I figure if we have to deal with this disease, we might as well be vomfortable and do what we need to allieviate anxiety.
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Barb. Diagnosed MDS 5q- in 2006. Stable until 2018. Dx high risk AML complex karyotype with TP53 mutation. On Dacogen, moving towards transplant.
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