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myleofibrosis
I was diagnosed with myleofibrosis five years ago at the City of Hope. I have been on Procrit 60,000units weekly. However; I have had to receive blood transfusions every couple of months when my hemoglobin drops below a 7. I am checking to see if there are any of you out there with my disease. Also are there any support groups in the Orange County, California area?
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