[mri7853]

I was diagnosed with MDS in 9/10. My hematologist began treatments with 250 mg of B6 every day, but I basically had monthly blood transfusions beginning 10/10 through 7/11. The next treatment was Aranesp shots over a period of several months which did not work. I began infusion treatments of Vidaiza April, 2011. Finally, October, 2011, my counts finally went up.

My hemoglobin count in January, 2012 was 11.3. My March hemoglobin count had gone down to 10.3 was a little disappointing.

I think my worry at this point is that I don't keep dropping. My hematologist had informed me that even if the Vidaiza works, I may have to have at least two transfusion a year. He has never said anything to me about my future. I think he does have another patient on this drug and she has been on it about three years successfully. I have never asked my hematologist about my future, and perhaps, that is a "crystal" ball question. I am presently 59 years of age, still working full-time.

Would love to hear from anyone else with suggestions/comments!

Thanks!