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Mike,
My husband, Ron (age 65 yrs) was dx Feb'09. He too has 5q- as part of his bone marrow aberations, but, along with that, he has 4 additional aberations. His first Hemotolist/Oncologist that dx him, recommended Revlimid as form of treatment, but, we had already requested a second opinion at the Winship Cancer Center at Emory Medical Center, so, the Revilmid treatment was not started. The "referring" doctor thought it best to let Winship Cancer Center review Ron's charts/case first.
Amazingly, the second opinion doctor recommended against Revlimid because of the additional aberations. He said, for Ron, while the 5q- calls for Revlimid, for the other aberations, Ron would also require a form of arsenic, which, was highly toxic. This new doctor recommended Vidaza or Dacogen treament.. but, at the same time, he had an open clinical trial with low dose Vidaza (trial name: e1905). We opted for the trial. I've posted Ron's progress since 4/01/09 under the clinical trial section of this forum.
I share this, because, perhaps your chromosomal aberations may be what they refer to as "Complex" like Ron's, vs just the 5q- ? I'd be curious to know if you only had the 5q- or if you had more aberations?
God Bless you and your caregiver. I'm sorry you had to cut your vacation short... ironically, we were suppose to fly out yesterday for Alaska.. on a Halibut Charter trip...plus a little R&R... and we had to cancel due to this new dx and treatment...
I told my husband, who knows... perhaps it was our guardian angel was protecting us from something far worse.... but, still... it's very hard to accept... <Very Disappointing>
Cindy
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