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Old Tue Apr 26, 2011, 10:12 AM
3blankets 3blankets is offline
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Join Date: Feb 2009
Location: Rochester NY
Posts: 16
Quote:
Originally Posted by KimO View Post
My daughter relapsed last September after being off cyclosporine for a year (7 months on cyclosporine after ATG and 9 month taper). Her counts have now returned to normal and the plan right now is to hold the current dose of cyclosporine (so as not to rock the boat) until she graduates from college this spring. I think restarting the cyclosporine sounds like a good first step in your case.
Do you remember when they decided to restart the cyclosporine? I mean, how low did they let her counts go before they restarted it? I have been on the cyclosporine now for a month, and my counts have not dropped but they haven't gotten better either. I am thankful they have not gotten any worse, but my hematocrit is 26. I would like to see an improvement! Thanks.
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Erin 38, AA diagnosed Sept 2008. Atg Nov 08, relapse Nov 10. pnh 12/12. 40% pnh clone. Currently on Soliris.
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